The Sleepydust ME/CFS video was made for the friends and family of ME/CFS sufferers [i.e. sufferers of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome / Post Viral Fatigue Syndrome.]

While I hope to be doing my video's on these own sooner rather than later, I am typing petitions, video's of my current state which is really hard to see for me, I cry after some times (when you see me doing better I am often on the aminio acids and other products, but they back fire I can't stay on them long, and don't have enough or proper medications to stop the dysotnia, dyskensia), so is editing, petition/site overviews, etc. as able, in between ongoing dystonia convulsions every day I wake up to, to you they would look like some kind of seizure but not quite, I can usually talk through them, some times I can not talk at all my mom cries when it happenes, this during a conversation, the seizures I can not speak, that is different, the other is from brain damage, they say there is none!.

My ME/CFS and FM has always been severe, the ME/CFS the worst (different from HepC, some similarities, my liver was fine when I was diagnosed with ME/FM), I had a few improvements, one from kutapression shots imported from the USA, they don't make anymore. The improvement was short lived, you had to stay on them. Also once the pyschatric drugging started, I started deterioating rapidly much faster. I didn't think I would survive the ME/CFS, I also have FM, Fibromyalgia, and Hep C. I also quickly found out that if you couldn't keep up you got left behind and forgotten. People 'get/understand/ cancer, very easily, even MS (which used to be attributed to hysteria), but ME/CFS long ways to go, government funding and research can make a difference and is just really starting in the past few years including the ever so slow CDC. Gulf War Syndrome is related in many ways as well, many get ill from environmental factors and tramuas, not post viral as mine was, actually I had the environmental as well, I had extensive exposure to pesticides prior and especially after. I may not have worsened so much because of the pesticides, and the near endless list of antidepressants.

I have found similar products, not injectable like the kutapression shots, Dr. Cheney buys him out all the time, http://www.lloydwright.org, and his http://www.hepatitiscfree.com/, freedome from HepC, site is quite extensive. Some of the products work on ME/CFS, oddly enough they are made in Canada but can't find them here. Also D-Ribose, Reduced Glutathione, Immuvior, Omega 3and 6, NAC, Vitamin/Mineral supplements, amino acids, pain medications (not tylenol kills your liver, I used to take bottles of it for the pain)

I didn't think I would survive all the damage from the psychatric drugs. Know that they were not forced on me, I was not in an institution. I admitted myself once going sucidal on them, the amount of times I had drug induced severe suidcidal idealation, some very servere, I had years of it on the. The list of drugs I was given is lengthy and the adverse reactions, I am still listing them. I was never given proper informed consent on any of them, or medical release forms or others involved.

There is so much discrimination regardin this. I just favored a video on youtube, they may have a test out soon. I am a 17 year survivor of ME/CFS and FM. And now a psychatric survivor still fighting for my rights to honest neurlogical and medical care from all the damage from their drugs, most antidepressants, not all though. Unfortunately I need medications to control the dystonia and dyskensia, or bring it down and pain, my immune therapy back, I need doctors to sign my forms, (they came in the other day, my disability forms, so far they are all frauded by doctors since the repeated brain/body damage) also the rest of the damage is severe, every muscle and liagement in my body is damaged, the left side drags around, my speech as shown in prior video here, the dyskensia has spread through my body, I still have seizures. I can barely sit up. For a long time I was left in bed with or without diapers.

I also belongs to a subgroup of ME/CFS Survivors that are dose sensitive or intolerant to antidepressants as well as other medications. The WHO (Myalgic Encephalomyelitis is defined by the World Health Organisation as a neurological illness (code WHO-ICD-10-G93.3 ) and several countries, such as Canada recognize ME/CFS as a neurological illness/disease (although many doctors and neurologists still refute this still. In Europe, the government of Norway and Catalonia (Spain) have come to the same conclusion and they are starting biomedical centres to treat the patients. No psychiatrist is involved in these centres

There are several really good sites for ME/CFS, I am a member of the
http://www.mefmaction.net/Patients/tabid/82/Default.aspx, PDF's are posted on site already, there is alot more information there, one of the best, as well as www.prohealth.com, formerally www.immunesupport.com, all the latest clincial journals are published there regarding ME/CFS, FM, and related.

back to typing and editing for petition and over view, I can't seem to shorten them enough. I also can not type unless my muscles and ligaments are sofenend enough, able to sit up, mind clear enough (rare), and no dysotnia convulsions, and dyskensia relaxed, also rare and enough energy. same goes with being bathed, not very often left like this, it gets demoralizing.

There are other vidoes on site here showing the dyskensia, a short one of the myocolonic dysotnia, speech problems (dysarthria) i have more but they are hard to convert and edit for me and to get them on video, mine can go none stop nearly, and for 4 days after Christmas did just about that. There is a search box at the top of the blog.

onward