Chronic Fatigue Syndrome
FDA CONFIRMS: XMRV- MLV Virus Variants found in 32 of 37 ME/CFS patients- HIV Related Retrovirus
Human
the National Institute of Health along with representatives from the FDA and CDC held a telebriefing for the press regarding the possible link between XMRV and ME/CFS. The findings of the FDA and NIH showed that 86.5% of blood samples taken from ME/CFS patients (32 out of 37 samples) were found to be positive for variants of the XMRV virus, a retrovirus that is related to HIV This is in comparison with only 6% of a healthy control group (3 out of
44 samples).
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- Cheryl Benson's blog
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FDA and NIH confirm XMRV retrovirus Study with ME/CFS survivors in Science Study of Oct. 2009
FDA
and NIH confirm XMRV retrovirus Study with ME/CFS survivors in Science
Study of Oct. 2009
discovered by Whittermore Peterson Institute in October 2009, and
several following studies could not replicated, has now been confirmed
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- Cheryl Benson's blog
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World Map of ME/Chronic Fatigue Syndrome & Fibromyalgia Suffers - Add yourself
I added myself and left a message on the "World Map of ME/Chronic Fatigue Syndrome & Fibromyalgia" suffers/survivors, when this first got started.
The Map now indicates that the outbreaks, either pandemic or spasmodic, are mostly in the temperate zones of the world, with a few exceptions, and one has to wonder where those people were at "Onset" of illness.
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- Cheryl Benson's blog
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Action Alert: April 20 Deadline for Comments ME/CFS NOT Mental Diagnosis to APA in USA, info here
IACFS/ME Urges Community Response to Risk that CFS May Become Classified as Psychiatric Diagnosis - from Somatic Disorder to Complex Somatic Disorder March 25, 2010
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- Cheryl Benson's blog
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Open Letter to Keir Starmer QC: Not in Public Interest to Prosecute Kay Gilderdale
OPEN LETTER - Kay Gilderdale Trial
emailed & original being sent by caregiver
January 8, 2010
Keir Starmer QC,
Director of Public Prosecutions,
50 Ludgate Hill, London
EC4M 7EX.
Dear Mr Starmer:
As a victim of Myalgic Encephalomyelitis (M.E.) since 1991 and being bed and house confined, mostly bed, and require caregiver services to keep me alive, and a concerned fellow human being, I am writing to state and request that it is not in the public interest to prosecute Kay Gilderdale and I am pleading with you to please intervene and drop the case.
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- Cheryl Benson's blog
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XMRV retrovirus found in 67% of 101 ME/CFS patients, test available and Testing for other viruses related
There is a big buzz about the XMRV retrovirus , although many viruses have been found and related to ME/CFS, several I have tested positive for. There is quite the list now most of the testing is in the USA so of course is the latest one. This latest retro-virus the ME/CFS community is excited for several reasons.
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- Cheryl Benson's blog
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Metro DC Gulf War Veterans Needed
MEDICAL STUDY: Metro DC Gulf War Veterans Needed
http://www.clinicaltrials.gov/ct2/show/NCT00810225?term=gulf+war&rank=1
Metro Washington, DC healthy and ill Veterans of the 1991 Gulf War are
needed for a new medical study at Georgetown University comparing genetic
and other differences between those suffering from Gulf War illness and
their healthy Gulf War veteran counterparts.
The study, being led by Dr. James Baraniuk, M.D., will compare ill Gulf War
veterans genetic material to that of their healthy counterparts. Among the
study's goals is to develop a better understanding of how Gulf War illness
affects the human body -- particulary the central nervous system.
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MEDICAL STUDY: Metro DC Gulf War Veterans Needed
I thought this might be of interest because of the CFS cerebrospinal fluid
study connection currently underway at Georgetown led by Dr. Baraniuk.
From blog Ninety One Outcomes: "Lasting Outcomes Affecting Veterans Of The
1991 Gulf War" http://91outcomes.blogspot.com/
article link-
http://91outcomes.blogspot.com/2009/06/medical-study-metro-dc-gulf-wa...
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MEDICAL STUDY: Metro DC Gulf War Veterans Needed
http://www.clinicaltrials.gov/ct2/show/NCT00810225?term=gulf+war&rank=1
Metro Washington, DC healthy and ill Veterans of the 1991 Gulf War are
needed for a new medical study at Georgetown University comparing genetic
and other differences between those suffering from Gulf War illness and
their healthy Gulf War veteran counterparts.
The study, being led by Dr. James Baraniuk, M.D., will compare ill Gulf War
veterans genetic material to that of their healthy counterparts. Among the
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Keys to Abusive Healthcare Behavior in Treatment of ME/CFS patients
This can be applied to any abuse by healthcare staff and certainly is the M.O. (method of operation) for my situation and by many involved and continued into 2008 being threatened by a neurologist involved, and going into 2009 now
From Slightly Alive, unpublished book manuscript, Mary M. Schweitzer, Ph.D., ©2009
As I read back through the psychiatric studies used to back the therapies of CBT and GET, and also as I began to read the mammoth and brilliant piece of work just released by Malcolm Hooper:
The Mental Health Movement: Persecution of Patients?
Chronic Fatigue Syndrome, ME - Videos 1 to 5 - Personal, Clinical Definition, Research, Treatments
5 videos, including personal accounts, Neurological Diagnostic Codes, Canadian Clinical Definition, some Research and Treatments. - always consult your doctor, homopath, natural path.
CFS- ME - 1of 5 - Intro & Neurological Diagnositc Codes -WHO/CDN
CLICK HERE TO WATCH: CFS- ME - 2 of 5 - Canadian Clinical Definition
May 12, Chronic Fatigue Syndrome/M.E. and Fibromyalgia Awareness Day
1991 Prozac Hearings, Adverse Drug Reactions, Violence, Suidices - My Personal Experience
What it is like to survive with severe ME/CFS, FM, HepC and some personal accounts, alternative therapies
The Sleepydust ME/CFS video was made for the friends and family of ME/CFS sufferers [i.e. sufferers of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome / Post Viral Fatigue Syndrome.]
CFS/ME and FM PDF's, with extensive Information, please read and pass on
Like all illnesses, the severity varies from patient to patient. Dr. Paul Cheney stated he had evaluated over 2,500 ME/CFS cases and it can be a nightmare of increasing disability with both physical and cognitive components. Severe cases can have both an MS-like and AIDS-like clinical appearance. Dr. Dan Peterson, found that, “ME/CFS patients experienced greater functional severity than the studied patients with heart disease, virtually all types of cancer and all other chronic illnesses”. 20 years after the epidemic, Dr. Peterson said he has never had a patient that recovered from ME/CFS. An unrelated study compared the quality of life of people with various illnesses, including patients undergoing chemotherapy, haemodialysis, as well as those with HIV (until the late terminal stage), liver transplants, coronary artery disease, and other ailments, and again found ME/CFS patients had the lowest quality of life. Dr.
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